In 2004, the Chromosome 18 Registry and Research Society, along with several other advocacy organizations, hosted the first World Congress on Chromosome Abnormalities. This conference brought together people with chromosome abnormalities and their families, advocacy organizations, and scientists. In this section of the website, you can learn more about the goals of the World Congress as well as read about some of the research presented there.
Inaugural World Congress
on Chromosome Abnormalities
Host Organizations:
The Chromosome 18 Registry & Research Society
Support Organization for Trisomy 18 and 13 (SOFT)
Disorders of Chromosome 16
IsoDicentric 15 Education, Advocacy and Support (IDEAS)
Chromosome 22 Central
Distal Trisomy 10q Families
Sponsors:
The Chromosome 18 Registry & Research Society
The Department of Pediatrics, UT Health Science Center at San Antonio
The Disorders of Chromosome 16
The Office of Rare Diseases, NIH
Natl. Newborn Screening and Genetics Resource Ctr., HRSA
March of Dimes
GlaxoSmithKline
National Institute for Child Health and Human Development
Morgan Stanley Foundation
March of Dimes
Quest Diagnostics
Genzyme Corp.
Hillback Foundation
Planning Committee:
Scientific Planning:
- Jannine Cody, Ph.D.
- Daniel Hale, M.D.
- John Carey, M.D.
- Celia Kaye, M.D., Ph.D.
Conference Planning:
- Claudia Traa
- Gloria Ellwanger
- Linda Koehler
- Trey Homan
- Rebecca Schaub
- Jennifer Reeves
- Bridgette Soileau
- Marsha Zimmerman
- Carol May
- Rose Tierney-Gumaer
In 2004, the Chromosome 18 Registry and Research Society, along with several other advocacy organizations, hosted the first World Congress on Chromosome Abnormalities. This conference brought together people with chromosome abnormalities and their families, advocacy organizations, and scientists. In this section of the website, you can learn more about the goals of the World Congress as well as read about some of the research presented there.
Inaugural World Congress
on Chromosome Abnormalities
Host Organizations:
The Chromosome 18 Registry & Research Society
Support Organization for Trisomy 18 and 13 (SOFT)
Disorders of Chromosome 16
IsoDicentric 15 Education, Advocacy and Support (IDEAS)
Chromosome 22 Central
Distal Trisomy 10q Families
Sponsors:
The Chromosome 18 Registry & Research Society
The Department of Pediatrics, UT Health Science Center at San Antonio
The Disorders of Chromosome 16
The Office of Rare Diseases, NIH
Natl. Newborn Screening and Genetics Resource Ctr., HRSA
March of Dimes
GlaxoSmithKline
National Institute for Child Health and Human Development
Morgan Stanley Foundation
March of Dimes
Quest Diagnostics
Genzyme Corp.
Hillback Foundation
Planning Committee:
Scientific Planning:
- Jannine Cody, Ph.D.
- Daniel Hale, M.D.
- John Carey, M.D.
- Celia Kaye, M.D., Ph.D.
Conference Planning:
- Claudia Traa
- Gloria Ellwanger
- Linda Koehler
- Trey Homan
- Rebecca Schaub
- Jennifer Reeves
- Bridgette Soileau
- Marsha Zimmerman
- Carol May
- Rose Tierney-Gumaer