Occasionally, the Chromosome 18 Registry & Research Society is featured in a magazine or a news publication. Here are a few of the stories written about the Registry and its members!
One of our members competed in the Scripps National Spelling Bee this year! In the photo, Kevin is spelling the word "catoptromancy". He spelled this word, as well as "echelon", but he did not qualify for the semi-finals based on his combined score (oral and written). Kevin, 13, represented his school, city, and county with style and sportsmanship. His family is especially proud of him, as they know the bumpy road he has traveled.
Local speller out, but enjoying trip
Dr. Cody talks about the treatment of chromosome conditions in this article about a child with ring 18.
Rare Disorder Leaves Teen Prone to Heart Attacks
The Daily and Sunday Express, based in the United Kingdom, has a story about a child with ring 18.
Our Baby Girl is One in a Million
Dr. Cody's story is told in a great article in Time Magazine.
Savior Parents
In 2001, The Chromosome 18 Registry & Research Society was featured in Wired Magazine.
The Citizen Scientists