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Worldwide Resources
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Office Closure  
The Registry office will be closed from July 29 through August 10th. Thank you!
The Registry office will be closed from July 29 through August 10th. Thank you!


Winners of the Chase Community Giving Campaign!  

Thanks to the support and votes of 2,830 people, we have been designated as a "$20,000 Charity" by the Chase Community Giving Campaign!!  Thank you to all who voted for the Registry!!

Thanks to the support and votes of 2,830 people, we have been designated as a "$20,000 Charity" by the Chase Community Giving Campaign!!  Thank you to all who voted for the Registry!!


Golf Tournament is a Grand Success!  


Happy Birthday!  

Help us celebrate the Registry's 20th birthday!

Take the Twenty Pledge!

What's Your Pledge?

Help us celebrate the Registry's 20th birthday!

Take the Twenty Pledge!

What's Your Pledge?


What's New on the Website?  

6/14 - One of our Registry members recently competed in the Scripps National Spelling Bee!

4/23 - A preliminary draft of the conference schedule is now available!

4/6 - We've posted some more information about the 2010 Conference in Tulsa! Take a look!

3/10 - Registry Board members recently traveled to Washington DC to advocate for funds to research chromosome abnormalities.

2/1 - We have more fundraiser photos!  This one comes from the Furgiuele Family's Skating Event!

1/20 - Check out photos from some of our members' fundraisers!  We've just posted pictures from the Botellos' 9th Annual Golf Tournament!

 

6/14 - One of our Registry members recently competed in the Scripps National Spelling Bee!

4/23 - A preliminary draft of the conference schedule is now available!

4/6 - We've posted some more information about the 2010 Conference in Tulsa! Take a look!

3/10 - Registry Board members recently traveled to Washington DC to advocate for funds to research chromosome abnormalities.

2/1 - We have more fundraiser photos!  This one comes from the Furgiuele Family's Skating Event!

1/20 - Check out photos from some of our members' fundraisers!  We've just posted pictures from the Botellos' 9th Annual Golf Tournament!

 


Our Motivation  



Get to Know the Registry  

We invite you to hear more from our members and their families in our Video Library.

We invite you to hear more from our members and their families in our Video Library.


Welcome  

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Becoming a Member

 

Find Out More About How You Can Help 

 

Visit our Photo Gallery

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Becoming a Member

 

Find Out More About How You Can Help 

 

Visit our Photo Gallery


Our Mission  

To help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead healthy, happy, and productive lives. We do this through:

To help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead healthy, happy, and productive lives. We do this through:


Team 18  

Meet the people who make the Chromosome 18 Registry & Research Society tick!

Meet the people who make the Chromosome 18 Registry & Research Society tick!


In Memoriam  


European Conference!  

The Chromosome 18 Registry & Research Society (Europe) will be hosting their first conference in Glasgow, Scotland, from July 30th through August 1st.  Click here for more details!

The Chromosome 18 Registry & Research Society (Europe) will be hosting their first conference in Glasgow, Scotland, from July 30th through August 1st.  Click here for more details!


Look Who's Making a Difference!  


Registry on the Web  

The Registry is now on Facebook!  We invite you to join our group!

We also have a blog that is updated weekly!

The Registry is now on Facebook!  We invite you to join our group!

We also have a blog that is updated weekly!


Upcoming Events  

        View Events Calendar


Contact Us  


Contribute  


A Note Regarding Funding
96% of the Registry budget goes to programs and services. Only 3% is spent on administration and fundraising.
96% of the Registry budget goes to programs and services. Only 3% is spent on administration and fundraising.
 

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